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Menu
  • Home
  • Orphan Diseases
    • An Overview
    • Testing Centres / Geneticists
    • Treatment Centres / Hospitals
  • Patients / Families
    • An Overview
    • Patient Voices
    • Patient Resources
    • COVID-19 Resources
  • About Us
    • An Overview
    • CHET Team
    • Contact Us
    • Expert Views
    • News and Events
    • Image gallery
    • Site Map

News and Events

News and Events

Why are there so few rare disease treatments and cures?

February 21, 2023

Why are there so few rare disease treatments and cures? Share Post

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International Epilepsy Day

February 13, 2023

International Epilepsy Day 13 February 2023 Share Post

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Global Rare Disease Statistics

February 13, 2023
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What has changed for rare disease patients in India?

February 2, 2023

What has changed for rare disease patients in India? Share Post

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Health equity for rare diseases

January 17, 2023

Health equity for rare diseases Share Post

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January is Cervical Cancer Awareness Month

January 16, 2023
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Media Coverage

  • Man procuring 117 oxygen devices with German friends’ help
  • Thalassemia patients struggle with blood and lack of access to drugs during lockdown
  • COVID19 restrictions hit blood donations
  • Bangalore thalassemia patients fight for access to drugs
  • U turn on national rare diseases policy
  • Struggle with thalassemia
  • Flawed approach to national rare diseases policy 2017
  • Need for rare diseases drug development
  • Policy support for blood disorders
  • CHET helps draft India's first state rare diseases policy

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