News and Events
News and Events
Rare diseases are common in royal families
Rare diseases are common in royal families Share Post Share on facebook Share on linkedin Share on twitter Share on pinterest Share on email This
Doctors’ Day Wishes 1 July 2022
Doctors’ Day Wishes – 1 July 2022 Share Post Share on facebook Share on linkedin Share on twitter Share on pinterest Share on email People
Vitiligo Awareness Month
Vitiligo Awareness Month June Share Post Share on facebook Share on linkedin Share on twitter Share on pinterest Share on email Vitiligo is a common
People with rare diseases need a clinical geneticist and a genetic counselor
Importance of a clinical geneticist and genetic counselor for rare diseases Share Post Share on facebook Share on linkedin Share on twitter Share on pinterest
Patient with rare disease wrongly diagnosed with paranoid schizophrenia
Patient with rare disease wrongly diagnosed with paranoid schizophrenia Share Post Share on facebook Share on linkedin Share on twitter Share on pinterest Share on
Digital health in rare disease diagnosis
Digital health in rare disease diagnosis – MendelScan Share Post Share on facebook Share on linkedin Share on twitter Share on pinterest Share on email
Media Coverage
-
Man procuring 117 oxygen devices with German friends’ help
-
Thalassemia patients struggle with blood and lack of access to drugs during lockdown
-
COVID19 restrictions hit blood donations
-
Bangalore thalassemia patients fight for access to drugs
-
U turn on national rare diseases policy
-
Struggle with thalassemia
-
Flawed approach to national rare diseases policy 2017
-
Need for rare diseases drug development
-
Policy support for blood disorders
-
CHET helps draft India's first state rare diseases policy