News and Events
News and Events
Why are there so few rare disease treatments and cures?
February 21, 2023
Why are there so few rare disease treatments and cures? Share Post
International Epilepsy Day
February 13, 2023
International Epilepsy Day 13 February 2023 Share Post
What has changed for rare disease patients in India?
February 2, 2023
What has changed for rare disease patients in India? Share Post
Health equity for rare diseases
January 17, 2023
Health equity for rare diseases Share Post
Media Coverage
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Man procuring 117 oxygen devices with German friends’ help
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Thalassemia patients struggle with blood and lack of access to drugs during lockdown
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COVID19 restrictions hit blood donations
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Bangalore thalassemia patients fight for access to drugs
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U turn on national rare diseases policy
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Struggle with thalassemia
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Flawed approach to national rare diseases policy 2017
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Need for rare diseases drug development
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Policy support for blood disorders
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CHET helps draft India's first state rare diseases policy