News and Events
News and Events
A Rare Cancer – Pancreatic Cancer
November 22, 2022
A Rare Cancer – Pancreatic Cancer Share Post
World Antimicrobial Resistance Week – 18-24 November
November 18, 2022
World Antimicrobial Resistance Week – 18-24 November Share Post
Rare Disease Facts
November 5, 2022
Blue Ribbon Art Exhibition and Film Festival Share Post What is Lorem Ipsum? Lorem Ipsum is simply dummy text of the printing and typesetting industry.
Media Coverage
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Man procuring 117 oxygen devices with German friends’ help
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Thalassemia patients struggle with blood and lack of access to drugs during lockdown
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COVID19 restrictions hit blood donations
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Bangalore thalassemia patients fight for access to drugs
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U turn on national rare diseases policy
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Struggle with thalassemia
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Flawed approach to national rare diseases policy 2017
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Need for rare diseases drug development
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Policy support for blood disorders
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CHET helps draft India's first state rare diseases policy