News and Events
News and Events
Rare Liver Diseases
Rare Liver Diseases Share Post Share on facebook Share on linkedin Share on twitter Share on pinterest Share on email We are familiar with common
Hospital treats rare disease which Salman Khan once had
Hospital treats rare disease which Salman Khan once had Share Post Share on facebook Share on linkedin Share on twitter Share on pinterest Share on
July is Sarcoma Awareness Month: A Rare Cancer
July is Sarcoma Awareness month: A rare cancer Share Post Share on facebook Share on linkedin Share on twitter Share on pinterest Share on email
Who is Lou Gehrig and why is the disease named after him?
Who is Lou Gehrig and why is the disease named after him? Share Post Share on facebook Share on linkedin Share on twitter Share on
Famous personalities with a rare disease
Famous personalities with a rare disease Share Post Share on facebook Share on linkedin Share on twitter Share on pinterest Share on email Rare Diseases
Rare diseases are common in royal families
Rare diseases are common in royal families Share Post Share on facebook Share on linkedin Share on twitter Share on pinterest Share on email This
Media Coverage
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Man procuring 117 oxygen devices with German friends’ help
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Thalassemia patients struggle with blood and lack of access to drugs during lockdown
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COVID19 restrictions hit blood donations
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Bangalore thalassemia patients fight for access to drugs
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U turn on national rare diseases policy
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Struggle with thalassemia
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Flawed approach to national rare diseases policy 2017
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Need for rare diseases drug development
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Policy support for blood disorders
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CHET helps draft India's first state rare diseases policy