An orphan or a ‘rare disease’ affects a small percentage of the population and are usually genetic. We are committed to making Orphan disease treatments available and accessible to all those who need it.
Our goal is to improve the quality of and access to the public health facilities and programmes in India for all.
Our health humanities specialists closely work with clinicians, patient communities and caregivers to facilitate better communication and meaningful connections towards empowering patients and caregivers.
As stakeholder participation is critical in the co-design of patient driven public health policies that foster the right to health for all, we work closely and collaboratively with women, children, people with chronic/rare diseases, caregivers, care providers, insurance and state agencies and other key stakeholders in policy evaluation and formulation.
Our bioethicists and instructional design team work closely with healthcare practitioners, educators and patient communities in co-designing and implementing CMEs that inform and sensitize doctors and other healthcare providers.